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The Stories

The people behind the installation. Listen to advocates, clinicians, and researchers share their experiences with migraine and headache disorders.

Behind every flag is a person. Behind every story is a fight for recognition, care, and a national response to a public health crisis that has been overlooked for too long.

Your story matters. Adding your story to the bank helps put a face on the millions of people affected by migraine and headache disorders. With your permission, your story may be featured on this site, in advocacy materials, or in Congressional testimony and media coverage.

Montana Hamlet

“Migraine has impacted all aspects of my life.”
Hemiplegic Migraine and Trigeminal Neuralgia, North Carolina

Mandee Schaub

Migraine Researcher, Chronic Migraine with Aura, New Daily Persistent Headache

Texas

Maddox O'Rourke

“After my concussions, my life pretty much turned upside down.”
Post-Traumatic Headache and Chronic Migraine Patient, Maryland

Karla Neville

“My hope is that migraine patients can live a life free of stigma and can access care and treatment options.”

Mother with Daily Chronic Headache and Migraine, Texas

Carlene Moore, Ph. D

“As a scientist and a researcher, one of my big goals is to stop the cycle of chronic migraine from generation to generation.”
Chronic Migraine Patient and Migraine Researcher, North Carolina

Dr. Amaal Starling

“People living with migraine, my patients, are some of the strongest people I know.”

Person Living with Migraine, Caregiver, Headache Specialist and Neurologist, Arizona

Matt Wellen

“Cluster headaches are all consuming, they’re determined to be one of the most severe pains known to man.”
Chronic Cluster Headache, Illinois

Dr. Victor Wang

Headache Specialist, Migraine with Aura Patient.

California

Zachariah Greenfield

“When you see me you don’t see… the traumatic brain injury is just as disabling as losing a limb.”

Military Veteran, Traumatic Brain Injury Survivor, Migraine with Aura Patient, Colorado

Angelica "Heidi" Brehm

“I remember being thankful I didn’t have anything in the apartment to take my life because I didn’t think I had the will power to resist utilizing it. And as much as I wanted the attack to end, I didn’t want my life to end.”

Mirabella Macias

“My days consisted of medication, insurance battles, ER visits and hospitalizations.”

Melissa Farmer-Hill

“It’s important to have people around you who understand. You need a team.”

Dr. Fred Cohen, Headache Specialist, NY

“I had migraine my whole life but I just didn’t know it until way later until residency.”

Brandi Underwood

“I began withdrawing from family and friends and really suffering in silence.”

Dr. Zayne Washington

“I developed pediatric migraine at age 8. I am able to both sympathize and empathize with my patients and so I’ve been inspired to pursue a career in headache medicine.”

Blynda Killian

“We almost lost my son.”

Jill Dehlin

“I have tried over 70 different medications to treat my migraine disease.”

Joe McKay

Cluster Headache Patient, New Jersey
Retired 9/11 FDNY Hero

“The doctors were giving with opioids and I got hooked on those… nothing was working anymore. I couldn’t cope with the pain.”

Joey Mazzone

“New Daily Persistent Headache completely put me to a halt. It’s impacted relationship, friendships, every aspect of my life.”

Madeline Eig

“I experienced my first migraine in kindergarten and was formally diagnosed in 3rd grade.”

Wesley Kutler

“I had to miss out on a ton of stuff like family gatherings, weddings, just so many big events in my life.”

Tom Sayen

“…it was like being poked in the eye with an ice pick every day for months. I couldn’t work. I couldn’t go to school.”

Susan Kabore

Chronic Migraine Patient and Caregiver, South Carolina

Bob Wold

“There is a very high suicide rate because there are not a lot of treatments.”

Mary Herne

Indigenous Migraine Patient and Clinician, New York

Behind every flag is a person. Behind every story is a fight for recognition, care, and a national response to a public health crisis that has been overlooked for too long.

Your story matters. Adding your story to the bank helps put a face on the millions of people affected by migraine and headache disorders. With your permission, your story may be featured on this site, in advocacy materials, or in Congressional testimony and media coverage.